As most of you know I've been having an unbearably hard time with Charley. To say that she is unhappy is an understatement. I love her so much. I can accept that she is wheelchair, nonverbal, and legally blind. I can not accept that she is miserable. Her screaming is uncontrollable. Her aggression is at an all time high. I am at a loss. I have called everyone and tried everything short or legal action to change the laws. So here is the deal. Charley qualifies for 24 hours of respite care a month. I have petitioned for more but am told that the max is 30. She doesn't not qualify through Medical for a home health aide or nursing level care in home because she has no "skilled needs". She does however qualify for a place called Together We Grow which would give us a break on the weekends. Charley and I had a meeting with them this evening and they turned us down for services because they fear she will be a danger to the other kids and herself. She also doesn't qualify for care services through the military because she lives with me not Jacob. She does however qualify for a state funded group home which I could probably get her into in a few months if I really wanted. So here are my options 24hrs of respite a month or Charley lives in a group home. It makes no sense to me. Where is the in between option? Where is the support for families who are literally pushed to their max? I am tired, frustrated, and physically ill because no one is helping me help my child. Even as extreme as things are we don't qualify for the services that would be best for our family.