Just a quick little post to say that things are still rough but I am feeling hopeful! Charley is still screaming, crying, and whimpering most of the day but occasional I get a small moment with her that is amazing. Today after school she fell asleep holding my hand! She is still asleep next to me and Wesley is asleep on me. I'm basically in mommy heaven. Charley has had a decreased appetite for about a week and a half now. On Easter Sunday she went to the hospital for IV fluids and labs. Nothing is coming back abnormal. She had a few seizures last week so we increased her seizure medication. I'm just trying to leave no stone unturned. I am constantly telling Charley "I don't know how to help you. I'm so sorry!" I pray that one day I will know. In the mean time I find strength in all the love and support from family and friends. Thank you